Thursday, April 4, 2013

What does fibromyalgia feel like?

Here is the link to a video on YouTube called "Fibromyalgia: What Does it Feel like." I was only "on the foothills of fibromyalgia," according to my doctor (Dr. Edelberg, author of Healing Fibromyalgia.) I would imagine that people with severe fibro must have the patience of a saint and the strength of a titan. Just from the symptoms I had, I can see that this video really accurate and that the dramatic music is really "on the mark":

http://www.youtube.com/watch?v=ME06rbUqDPk&feature=player_detailpage


Dr. Edelberg's protocol has reversed my fatigue and I no longer feel like I have the flu or feel "beat up all over." Fibro and chronic fatigue are often overlooked by medical testing, misdiagnosed, and over-medicated. Fibro is a reversible condition and there is a very specific protocol--see Healing Fibromyalgia; parts of this book can be read for free at www.amazon.com.

The things I identified with directly from the video are as follows:

I felt like I had an "invisible illness," feeling like I had the flu, like every inch of my body ached at times, having brain fog as if I walked into a room and forgot why I was there--all the time. Having a sensitivity to smells and chemical sensitivities, constant pain in my upper back (this is commonly where fibro can start), giving up things I enjoyed (for example, hearty exercise used to always be a part of my life but I hadn't been able to do it in years); feeling like the exhaustion altered the course of my life in that I was so tired I was limited in the amount I could do, thinking no end was in sight, and this is just the way life would be for me, going through the acceptance process that I could not be like others who had normal energy--I felt different that other people, had a hard time making advanced plans, especially on lack of sleep when I felt like I had the flu. I felt repeatedly punched in the morning, like I was "beat up" or "hung over," occasionally having tender skin like bruising, feeling completely drained so I could not drag myself out of bed, and feeling exhausted if I slept under 10-12 hours. On top of that I identified with the part of the video saying that many don't believe it exists, I have been called lazy, said to be depressed when I was actually very tired, and I have been told by folks "it's all in your head," and of course, for years, was told there was "nothing wrong with me" by doctors who were ill-informed.

And I was only borderline fibro--think what people must go through if they have it severely!!! If you know anyone who has fibro, please refer them to Dr. Edelberg's book.  I am not affiliated with him in any way, except that I went in as a patient and no longer am exhausted!  For years I felt like I had severe, constant jet lag as well as the flu at times, and that was my norm--but not anymore!!!

The video says there is not a cure or treatment and that fibro but this is incorrect! Also although fibro is stress related, I am not sure if it is actually a disease of the central nervous system. It is a condition that can be fully reversed or almost completely reversed!

The person who made this video had debilitating fibromyalgia, so I did not experience the following symptoms myself, but I thought the video was very specific and telling about what it is like to have it: I did not experience the debilitation or pain like tin foil hitting a filling, and I did not have any sensations of bad arthritis, full-body spasms; I did not experience constant debilitating full body pain where is hard to stand or walk across the room at a snail's pace. I also did not experience being overwhelmed by sounds.

My formal diagnosis is now hypothyroid--but this went for years and years undiagnosed, and I was eventually told I had chronic fatigue. Because my thyroid is in the low-normal range, it was overlooked as hypothyroid. Furthermore, as I've said in earlier blogs, I was being treated in the holistic health community for adrenal fatigue and also estrogen dominance (a very common hormonal imbalance even in younger women.)

Dr. Edelberg agreed with my prior diagnoses and put me on a tiny dose of natural cortisol (it has to be a small dose to be safe), a small dose of natural thyroid medicine, and also DHEA and progesterone cream, as well as St. John's Wort and magnesium for the muscle aching.

The book Dr. Edelberg pointed me to was his other book, The Tripple Whammy Cure, which is a great book for any woman to read who is experiencing exhaustion. And yes, if you have the conditions listed in the book [the adrenal fatigue, estrogen dominance and sluggish thyroid I have been talking about in this blog,] there is a cure!

A Votre Sante (Here's To Your Health,) Alix

Wednesday, March 13, 2013

Exhaustion Mystery finally solved!

Welcome to Elan Vital Wellness.  This forum cites holistic health studies and trends as well as chronicles my experience with adrenal fatigue, estrogen dominance, and exhaustion.  Never attempt to treat yourself for any condition--always get help from a qualified practitioner.  This post mentions my new doctor who is both a western medicine doctor and alternative health practitioner, so it is possible to be treated by someone who is qualified in both natural and conventional modalities.

I invite you to read this blog as you may possibly read parts of your own story:

After three years of investigating, the exhaustion mystery has finally been solved!!!  This week I went to see Dr. David Edelberg in Chicago.  He is a board certified western medical doctor as well as an alternative medicine practitioner.  A leading expert in women's health, he has written the books Healing Fibromyalgia and The Tripple Whammy Cure. 

This blog has explored holistic health and discussed adrenal fatigue, estrogen dominance and borderline/sluggish thyroid levels.  Estrogen dominance is common amongst women (causing exhaustion and bad PMS) and, over the past couple of years, I have been treated naturally with bio identical hormones, and an eating plan high in protein to balance blood sugar and stimulate the thyroid. (The natural hormonal protocol I was using is called the Kalish Method.)  My functional nutritionist, Kristie Yaakoby was helping me with my an extensive protocol.  In this blog, I've also talked about the environmental causes of estrogen dominance, as well as adrenal fatigue in prior posts of this blog.  (Men with so called man-boobs are estrogen dominant, so this is a pretty relevant issue for men as well.)

The eating plan I have been using to regulate blood sugar--low blood sugar spikes cortisol, and exhausts the adrenals and thyroid--is a diet high in protein, and I have also been eating a fruit with the meal to keep up my blood sugar to stimulate the thyroid according to the research of biologist Ray Peat.  I've also taken the MRT food sensitivity test and done acupuncture, but after 2 1/2 years of holistic eating and treatment, I was still exhausted and needed something more. 

Now, thanks to Dr. Edelberg, I have a new protocol and a diagnostic name to explain why I was so exhausted all these years and why felt like I was "beat-up" when getting less than 10-12 hours of sleep.

My formal diagnosis is hypothyroid (sub clinical.)  Many women who are in the so called "normal-low" range of thyroid hormone tests actually need to be treated as hypothyroid.  In fact, this situation is an epidemic that is making women (and men, too) think they are crazy because they are exhausted and their test results are coming back "normal."  (See the book The Tripple Whammy Cure because hypothyroid often goes hand-in-hand other conditions like adrenal fatigue or hormonal imbalance and low serotonin.***)

I like to call my experience with adrenal fatigue, estrogen dominance, and hypo-thyroid the Three-Headed-Dragon, because any one condition can be exhausting, but this is exhaustion that begins to build exponentially.

I was told also that I was "on the foothills of fibromyalgia," but not diagnosed with, it since Dr. Edelberg said my symptoms are totally reversible.  This explains the muscle pain in my upper back and neck all the time, as well as feeling like I have the flu when tired.  Not a good thing. I have cut back on my activities radically over the years, and not been able to have a full schedule--only doing one small activity on the weekends, and then sleeping.  This kind of exhaustion is not easily understood by someone who hasn't experienced it.

It has been hard to talk about the chronic fatigue, because most people have not experienced it--responses I've heard are," "you're lazy," "you're imagining it," "you sleep too long," "if you sleep less, you'll feel better," and the ever popular, generic "Yeah, I'm tired too."  And it is also very hard to talk about it considering that I know people who are dealing with much more serious health issues.  In addition,  several people in my family have had much more severe chronic fatigue and fibromyalgia.  So in light of these more serious conditions, it seems better not to bring it up.  For me, this kind of moderate chronic fatigue is truly "an invisible condition," and can go undiagnosed for years.

I never would have considered myself "on the foothills of fibromyalgia" because, as I said, the people I know who have fibro are in severe pain and on pain meds.  Fibro often begins as pain in the upper back/neck, and my pain scale in that area is only about a 4, no big deal.  Feeling like I had the flu when tired was worse for me. 

More women have fibromyalgia than diabetes, and it is commonly not diagnosed, mis-diagnosed, sometimes diagnosed as rheumatoid arthritis, or they are told they are imagining it--there are also aggressive and abusive treatments that are totally inappropriate that are being done by physicians who are ignorant about fibromyalgia. 

Dr. Edelberg offers healthy, progressive solutions in order to completely reverse fibromyalgia and the triple whammy exhaustion of adrenal fatigue, estrogen dominance, possible low serotonin, and/or hypothyroid.  The triple whammy can lead to fibro, and fibro patients often have low serotonin.  Normal levels of serotonin are needed as a stress buffer.  Men generally have higher serotonin than women and are therefore more protected from stress.

My protocol, as prescribed by Dr. Edelberg, now includes small doses of natural medicines:  A very small dose of natural thyroid hormone, a tiny dose of natural cortisol [this must be given in very small doses], and St. John's Wort to boost serotonin.

The boost in serotonin will help with the flu-like symptoms, and the PMS.  My low serotonin levels were not low enough to be diagnosed as depression [I am, in fact, not depressed, but tired, which is very different, and aderenal fatigue/hyopthyroid may possibly misdiagnosed as depression.]  Dr. Edelberg will have me continue with natural progesterone and natural DHEA for the PMS also.

The magnesium supplements he gave me will possibly stop the muscle aching/cramping.  This and the flu-like feeling is why he said I am "on the foothills of fibromyalgia."  He said not to worry about these symptoms because I will feel better in a month.

Today is day 3 of his protocol, and I no longer feel the flu-like feeling when tired, and the muscle pain in my neck/back has been reduced by at least 50% so far!

A month's time for recovery is an extremely short time considering I have dealt with fatigue and exhaustion that has increased progressively since I was in high school!  (At one point I was diagnosed as a healthy "long sleeper" at a sleep disorder clinic, so I gave up trying to look for relief, since I thought my life would always be like this.)

And considering that I have been actively searching and continuously experimenting for 3 years with holistic treatments that weren't working for me--although I was doing the right things, but Dr. Edelberg added a couple of crucial things to them--a month's time for feeling better is miraculous!  Dr. Edelberg has been working for many years with women with exhaustion, having incredible success at it.  For people with "mystery fatigue" who's test results are coming back normal, I highly recommend his books, and if you can, get to Chicago to see him if you think these books might apply to you.

Again, my diagnosis is hypothyroid (at the sub clinical level) caused by low blood sugar, not fibromyalgia (only the "foothills" of fibromyalgia, meaning some muscle pain and also aching as if I had the flu, which is caused by somewhat low serotonin resulting in bad PMS but not depression.)  I will write another post with an update in 6 weeks at my followup appointment.  I hope to say then that I am totally better.  Dr. Edelberg says I probably will be better then but one exception might be the brain fog--which is another thing I don't like talking about, since it is very hard for people to relate to if they haven't experienced it to the same extent.  But not to worry, he has another protocol for that as well. 

If you liked this article and have friends with "mystery fatigue," please pass this along!


A Votre Sante (Here's To Your Health), Alix

***As a side note, Ray Peat has done work on serotonin dominance, which he says also causes aggression/depression (as does low serotonin), so people who think they are depressed [adrenal fatigue/thyroid are often misdiagnosed as depression] should not necessarily run out and get on St. John's Wort without getting a neurotransmitter profile from a qualified doctor--hopefully one who will offers natural treatments as an alternative to conventional, and who understands balanced serotonin levels--Dr. Joseph Mercola sites studies that antidepressant medication is no more effective than a placebo. Ray Peat cites an research indicating that Prozac is responsible for 50,000 suicides. (Check out www.Mercola.com and google Ray Peat's articles for more information.) 





Wednesday, February 20, 2013

Fibromyalgia?

In the 2 1/2 year quest to heal from adrenal fatigue and estrogen dominance, I have encountered a twist in the road.  In three weeks I have an appointment with the renowned Dr. Edelberg, a specialist in fibromyalgia.

Basically fibromyalgia is chronic fatigue plus flu-like aches and pains.  In severe cases, the pain can be debilitating and pain medication is needed.

In my case, I have chronic exhaustion and pain when I get under 9-10 hours of sleep.  Often fibro patients also have adrenal fatigue, estrogen dominance and sub-clinical low levels of thyroid hormone.  (I tested as being in stage 3 of adrenal fatigue--exhaustion--2 1/2 years ago plus estrogen dominance.  I also have the low basal temperature indicator of low thyroid levels.)

Dr. Edleberg prescribes a mostly natural protocol for fibro.  I am hoping to get a natural thyroid hormone if I need to take one. 

Fibromyalgia affects 5-7% of women, and sometimes takes a long time to diagnose because most doctors are not educated or informed on the condition.

Dr. Edleberg has had great success healing his patents, and I will have to wait three weeks to see what the outcome is for me.

Check out his book  Healing Fibromyalgia.  He has a great reputation as both a western medical doctor and naturopath who helps many people with fatigue caused by a variety of conditions.

A Votre Sante,  (Here's To Your Health) Alix

Thursday, January 24, 2013

More on Adrenal fatigue

Here are two links with information about adrenal fatigue.  I have been being treated for two years for severe adrenal fatigue with an eating plan (eating enough protein and fats, and keeping my blood sugar normalized.) I've also been taking bio identical hormones (the Kalish Method), since adrenal fatigue leads to female hormone imbalance.  After seeing an acupuncturist from time to time, I am still very tired, so I am always searching for new ideas.  My friend Claudia is a holistic health professional who is helping me with more ideas--check out her website at www.livingmindfully.net

She talked to some of her friends in the holistic health field and sent me the following link:

http://naturalanxietytherapy.com/category/adrenal-fatigue/

Also, I also found Norm Shealy's acupressure points that are helpful for adrenal fatigue:

https://www.normshealy.com/?page=118&title=The%20Sacred%20Rings

[Copy and paste web addresses that do not automatically link]



A Votre Sante, (Here's To Your Health,) Alix

Friday, January 11, 2013

Invest Organic

For those of you who want to invest in stores selling organic foods, check out Hain, Sun Opta, United Natural Foods, and Whole Foods Market.  Grocery stores usually do well in recessions, and data shows that more people will be buying organic foods in the future.

www.nasdaq.com/article/organic-food-stocks-health-trends-may-boost-these-stocks-cm87319
(copy and paste in browser)

A Votre Sante (Here's To Your Health), Alix

Monday, January 7, 2013

GMO Fact Check

The publication Natural Awakenings did a GMO fact check in their January 2013 issue.  The article talks about how the Union of Concerned Scientists are questioning the safety of GM foods.  The article also mentions that the Center for Food Safety has concerns about allergens and toxins from herbicides and pesticides that are used on and implanted into the GM foods. 

This article also speaks about research that tracks the 527 million pound increase in pesticide use on GM crops.  Also in this writeup according to Warren Porter, Ph. D., a biologist is concerned that glyphosate (in Roundup) is an endocrine disruptor.  This material also sites a Canadian study showing that Bt toxins from GMO corn (fed to animals, coming from meat, and now being put on the market for human consumption) is showing up in umbilical cord blood and the blood of pregnant women. 

I'm glad this national publication is covering the dangers of GMO foods.  And although the initiative to label GMs in California didn't pass, several other states are attempting to pass labeling legislation this year.  Check out Melinda Hemmelgarn's website--she wrote the article for Natural Awakenings--she is known as "the food sleuth."  kopn.org and enduring-image.blogspot.com.

By the way, "Hello," to my readers in Canada and Europe.  BPA is banned in the lining of tin cans in Canada (but not America), and of course, GMOs are banned in 25 countries--many of them in Europe.  I hope America can catch up to the rest of the the Western world soon!

A Votre Sante, (Here's To Your Health,)  Alix

Thursday, January 3, 2013

Good News for Labeling GMOs in 2013

According to the Organic Consumers Association:  "We may have narrowly lost the GMO labeling fight in California this past November, but there’s good reason to believe we’ll win in at least two or three states in 2013.

Today, activists in Washington State will deliver approximately 350,000 signatures to the state legislature, guaranteeing that when voters show up at the polls in November, they’ll get the chance to pass I-522, a statewide GMO labeling initiative.

On the other side of the country, Vermont is picking up where it left off last year after the governor caved in to Monsanto’s threats to sue the state if it passed a GMO labeling law. Undaunted, and buoyed by stronger-than-ever support from consumers and lawmakers, Vermont legislators will reintroduce GMO labeling legislation in early January. Connecticut is moving forward, too, with plans to introduce a similarly popular GMO labeling bill early this year.

All signs point to an uphill battle for Monsanto and friends to defeat I-522 in Washington State. I-522 proponents have a full nine months to raise awareness and money, compared with the YES on 37 (California Right to Know Genetically GMO Labeling) Campaign which had only six months to reach voters and raise money. Plus we had to raise a lot more money in California, which has five times as many voters as Washington."

A Votre Sante (Here's to Your Health), Alix
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